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  1. #21


    Hugs to you deli, and thank you for sharing your story.
    I intimately know that feeling of being a burden, and of fearing what tomorrow will bring… Interestingly, there is a good chance that my problems were started because of an antibiotic I took in spring of 2011, something that studies are now showing can cause tendinitis, the root cause of all my problems! It is frustrating when we take a medicine that we think is going to help us get better, and instead it hurts us. I am wishing you comfort as you go through this tough time, I will be rooting you on as you get better!
    I'd like to share a suggestion, something I really briefly touch on in my original post – the single biggest factor in my not feeling like a burden anymore was going to see a psychologist. He has helped me stop thinking catastrophically (e.g., "oh no, now my elbow is hurting… I just know this whole thing is going to start all over again!") Rather than keeping it to yourself, one of the biggest ways that you could really care for yourself would be to see a psychologist. But whether you don't or you do, you are not a burden! Your family loves you and needs you, even if the way that you give back is unconventional. No one can ever replace you in their lives, and they are incredibly lucky to have you. <>
    Join me at my Podcast site: <a href="">We Turned Out Okay: The Modern Parent's Guide to Old-School Parenting</a>

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  3. #22


    Stella, I LOVE this idea of a sixth C!
    Communicating, as you say, with supportive others about how I felt going through this is literally what got me through it… I almost feel like communication could be looked at as the opposite of anxiety, when used correctly.
    There were times while speaking to my psychologist that I almost felt like he was drawing out a poison – very draining, but I sure felt better afterwards.
    Thank you so much for sharing about your situation :-)
    Join me at my Podcast site: <a href="">We Turned Out Okay: The Modern Parent's Guide to Old-School Parenting</a>

  4. #23


    Expedition Homeschool, thank you for the hugs and here they come right back to you :-)
    You're right about disabilities not getting screen time, and I think we have Topsy to thank for shining a light on that here; thank you SO much Topsy!
    When I was in a wheelchair, a few things truly shocked me, and one of them was how awful wheelchair ramps are, in every city and town, at least up here in the Northeast. It was shocking! Speaking of something not getting "screen time"…
    You also speak of "the resulting weight gain," and I can really relate to that too. I have put on a few pounds since this whole thing started, just because sometimes it is so difficult to get exercise and eat well. People can be so judgy, sometimes I want to hang a sign on myself that says "ask me about my health!"

    I just want to say a huge thank you to everyone who has read my post, and also to all of you who have commented on it. I have really felt all of your positive energy and hugs… It's been very validating and affirming, as a homeschooling parent and also as a human being connecting to other human beings. I'm grateful to Topsy for inviting me in, and grateful to all of you for welcoming me into this community!
    Join me at my Podcast site: <a href="">We Turned Out Okay: The Modern Parent's Guide to Old-School Parenting</a>

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Everyday Life Lessons: Homeschooling With A Chronic Illness