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  1. #11

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    You're welcome :-)
    I'm looking forward to your thoughts!
    Join me at my Podcast site: <a href="http://weturnedoutokay.com/">We Turned Out Okay: The Modern Parent's Guide to Old-School Parenting</a>

  2. T4L In Forum Dec19
  3. #12

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    I'm still in silent awe, and my hands just remembered to start clapping.

  4. #13
    Senior Member Enlightened
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    It's a beautiful and very moving story. I often remark to friends that whilst I am in good health, I notice parallels between blogs like this one about homeschooling through illness and my own experience homeschooling through a very upsetting legal divorce case.

  5. #14

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    Thank you for sharing your story. I'm in the middle of an unexpected medical situation with my husband (he was just diagnosed with tonsil cancer and underwent surgery this Monday.) It is comforting to read a story like yours. You just never see it coming....do you?
    Again, thank you and all the best to you and yours.
    Homeschooling two sons (14 and 16) from day one. Atheist.
    Eclectic, Slackschooler covering 8th and 10th grades this year.

  6. #15
    Senior Member Evolved Deli76's Avatar
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    Its not easy. I see the 4 C's and I can say I am calm...on the outside. On the inside I am scared, I am crying, I am yelling and screaming. Hoping to find an answer. So far I have been diagnosed with type 2 diabetes and liver damage. The liver damage is from taking so many otc pain relievers. I took the pain relivers for the endometriosis, ovarian cysts ( I have since had a partial hysterectomy), severe migraines, wide spread body pain that seems to mainly be on the left side of my body. I have learned to control my diabetes with a 75% raw diet. I have learned to control my pain with natural foods and oils. My liver has improved with this as well. However, I have a pain in my chest on the left side. I have had this for several years. I went to the cardiologist 2 weeks ago and was told the eeg/ekg was normal. If the pain persists, I will be wearing a heart monitor to try and catch it. It stops me in my tracks, wakes me up at night. Then last week, something happened that has not happened in a while. I started bleeding from my rectum. My stomach is killing me. Anything I eat from the shelf or meat from certain stores makes me sick. I am scared. Scared to death. I am not even 40 yet and I am having so many health issues. I look at dd and hope I can be here long enough to have an impact on her life. I am hoping my health will still be good enough to homeschool her. Hoping to have the energy to keep up with her needs. Am I able to keep up with her needs? Can I giver her the attention she needs? I am in constant pain. During all my tests, I found out that I am allergic to all pain relievers. I have no pain relief except by natural and legal means. Medicinal Marijuana is not legal here. So I can not take it. I don't want to risk losing everything and going to jail. How can I be of any use to my family if I am in jail or at the court house fighting. There is a bill on Abbotts desk for medicinal Marijuana, but it is only for epileptics. What about the others? There are days when my legs just hurt. They don't want to work. My head is pounding. My chest hurts.If there were a legal medicine that could help with the pain and not make me loopy or tired or not have some type of reaction, I would take it. I take it day by day. I am at this point able to give lessons. I just worry about the future of our homeschool journey. I am hoping my health will not decline to the point that I cant homeschool. The future at this point is somewhat known, but not completely known. I feel like a burden. A complainer. I try to keep it to myself.
    Bobo 13 yrs old - marches to the beat of her own drum, driven, out going and loud, yet she loves nature
    Booger Boy 21 yrs old - quiet, self assured, confident and laying his own path

    umbers cucumbers!!!!

  7. #16
    Site Admin Arrived Topsy's Avatar
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    Quote Originally Posted by Deli76 View Post
    I feel like a burden. A complainer. I try to keep it to myself.
    But DON'T! If nothing else, use this community as a release - - a place to vent/scream/bemoan/and yes...complain to your heart's content. Because there ARE others in your boat and those of us who have dealt with ongoing physical or psychological pain and illness can truly empathize. Thanks for making yourself vulnerable and sharing your struggle, Deli76. Huge (((hugs))) to you tonight!!!


  8. #17

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    Hugs to you Deli. It's really very difficult when your condition isn't somewhat stabilised, and you don't yet know what you can expect or find ways to deal with pain/anxiety/fatigue.

    I don't know about you, but anxiety was my most debilitating symptom. Taking meds to deal with that was a turning point in how I deal with the emotional reality of having a chronic, progressive disease.

    Can you talk with your GP about how you are feeling ? CBT is another option, so is meditation.

    I can't stress enough how much better I cope with the physical symptoms and uncertainty now.

    I also prefer stoicism, but it really is OK to - gonna invent another 'C' - communicate with supportive others about how you feel.

  9. #18

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    Firstly huge hugs to you! While none of us will know what it is like to live your life and your struggles, I think many of us were nodding reading your post due to chronic illness and similar situations in our lives. Thank you for your post, it's a topic that doesn't usually get 'screen time' and I'm glad it has.
    I've had multiple lifelong medical health issues since childhood and diagnosis from my late teens. It's been hard, it still is hard. No one sees the issues as they are 'invisible', all they see is the resulting weight gain I have, which of course makes it all worse. My son has multiple physical issues as well, on top of having an Aspergers diagnosis, a high IQ and multiple learning disorders and we pulled him out of school in the second grade as he could not cope anymore and was suicidal. As hard as it is on my health, it's worth it all to see him happy at home and smiling. We are in our 4th year of homeschooling now. I struggle and have a lot of home days, bed days, nothing days.
    I too have found that my son has benefited from seeing me go through all of this. He too has some of the same issues I do and can see that it's ok to take time out (his depression was bad at one point from all the pain) as he sees me take time out. He is very empathetic, he has grown to be independent and capable of taking care of himself (toileting, dressing, feeding/cooking basics like cereal and microwave meals) and doing quiet activities (TV or DVD with headphones) when I am suffering severe miagranes and cannot see or function. He offers to help me all the time and does chores for no allowance/money. For a child on the Autism spectrum, these things are a huge deal on their own let alone the fact he has his own physical struggles.
    But we love homeschooling. As much as I struggle and am tired all the time, it's better for both of us. I wouldn't change it.

  10. #19
    Site Admin Arrived Topsy's Avatar
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    Quote Originally Posted by Expedition Homeschool View Post
    But we love homeschooling. As much as I struggle and am tired all the time, it's better for both of us. I wouldn't change it.
    Meme worthy! Kudos to you!!!


  11. #20

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    crunchynerd, I can reply only with my own :-)
    Join me at my Podcast site: <a href="http://weturnedoutokay.com/">We Turned Out Okay: The Modern Parent's Guide to Old-School Parenting</a>

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Everyday Life Lessons: Homeschooling With A Chronic Illness