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  1. #11

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    b_light, thank you for starting this thread! I have some chronic health issues and it's great to hear how everyone manages them while homeschooling! It's been one of my concerns about actually starting... would I be able to devote enough energy into doing everything, would I be able to get my daughter out for enough socialization, etc.

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  3. #12
    Senior Member Enlightened Lianne13's Avatar
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    I found this thread while looking to see if anyone on the forum was discussing fibromyalgia. My rheumy finally weeded out all other causes for my symptoms and diagnosed me last week. I have been having migraines, odd pains, fatigue and other stuff for years that seemed to be increasing. I finally started going to a dr 6 months ago to start getting checked out because I was finally in enough pain I couldn't ignore it anymore. This winter it definitely affected our homeschooling, because after lunch I was in bed till dinner time due to fatigue and was always behind on grading school work. Our girls were very helpful by bringing me hot tea and doing housework without being asked when they saw me in bed.
    Last edited by Lianne13; 03-30-2018 at 11:16 AM.
    Two daughters, military brats to active duty Air Force, ages 13 and 15.
    Part-time homeschooler since 2007 turned full-time in Feb 2013.

    We belong to the Farm School Satellite Campus Umbrella Program

    Main curriculum: Teaching Textbooks and Shmoop University Get 60% off Shmoop

  4. #13
    Senior Member Evolved Deli76's Avatar
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    I just found out a couple of months ago that I have Multiple Sclerosis. I came back negative for Lyme and Lupus. They took a CT and saw a lesion on my pituitary gland. They said they wanted me to see a neuro surgeon right away, but I needed to have an mri to see exactly where it was and how big it was. Well....the tumor didnt show up on my mri but the lesions did. I have been doing physical therapy for the last 6 weeks. I have gained in some areas in my body, while I havent in other areas of my body. The migraines have turned out to be my occipital nerve. I have been complaining about this nerve since I was 12!!! Turns out it is a symptom of MS. I am so aggrivated that it took this long. I finally had a doc listen. The bad news, they prescribed me baclofen. I thought it was a miracle until these last few days. A severe side affect hit me and I can no longer take it. It helped with my bladder, muscle spasms, tightness, I havent had a migraine since taking it. But, no more. I have some major sensitivities to meds. I should have suspected. The doc told me not to stop walking.I suspect If I stop, I might just lose it and have to fight like hell to get it back. So, i still have my dog walking business. Luckily, being self employed, I am able to make my own schedule. Co-op has been great. Dd is the last child at home, so its a great opportunity for her to NOT focus on me. And get to hang out with some kids. She came to me really worried the other night. We really just manage day by day. Keep a light schedule. My day consists of 3 dog walks, co-op for about 3 hours 2 days a week, and 2 days of physical therapy for 1 hour each. Over the last few weeks we havent gotten much done. My baby brother passed away from a heart attack. I am next of kin and did all the planning. So this week we are playing catch up with the subjects we do at home and at co-op.

    With this thread, I would like everyone to be vigilant about there health. My major symptoms started when I was 28. A few months after dd was born. I was written off so many times. I would quit seeking health care because I got frustrated from doctors not taking me seriously. Today, dd is going for an mri because of her migraines. I am hoping she is ok. I have been pretty vigilant expressing my concern for her with my own history as well as my family history. My father had an aneurism and a seizure at the same time because he had an extra vein in his brain. He broke 2 vertibrae because he seized so hard. He is lucky to be with us today. He also had a heart attack. He was complaining of being tired. Half way up the mountain, he had a heart attack. We had to go down the mountain aboiut 10 minutes, go to a small town at the base of the mountain, then he was transported to Santa Fe and had surgery. He is very lucky to be alive.
    My baby brother passed away March 3 from the exact same heart attack my dad. My baby brother is 29 yrs old. He told me over the summer that he suspected he had a heart attack. He was at work, felt pressure on his chest. Went to the ER, they diagnosed with dehydration. If they had only done a sonogram of his heart, they would have seen his narrowed artery, enlarged heart, and the artherosclerosis. I told him over the summer he needed to have it looked at. He didnt. The night before he called our sister, said he wasnt feeling well. Talked to his girlfriend. He was seen about 1 am pacing in his front yard. Why didnt he call 911? I live 15 minutes away. Why didnt he call me? He has 3 children, ages 2,3 & 4 who will not ever know him. I am not mad at him, I am mad at the doctors who didnt do the sonogram of the heart. That one thing would have been a game changer.
    So please, be vigilant about tour health. Demand better from your doctor. Demand to be heard. If you need to , get a second, third, fourth opinion if needed.
    I am sorry to go on a rant, well not really a rant, more of a lesson to be learned if shared kind of deal. These last couple of months have been hard.
    Bobo 13 yrs old - marches to the beat of her own drum, driven, out going and loud, yet she loves nature
    Booger Boy 21 yrs old - quiet, self assured, confident and laying his own path

    umbers cucumbers!!!!

  5. #14

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    Deli76,
    I am sorry for your loss of your brother.

    I’m also sorry to hear of your MS diagnosis. My cousin has MS and I have seen all she has dealt with the past twenty-five years. I hope you can find the care and relief you need.

    Thank you for your post. I thought I learned how to fight for medical care when dealing with my children’s issues when they were young. However, I don’t seem to be able to fight for my own care; partly because I worry about over-reacting and as a result, minimize my concerns. After reading your, and Lianne13’s posts today, I called specialists and made appointments.

    I’ve had various symptoms, including a cough, that have been dismissed by my doctors for the past two years. A few months ago new symptoms started one of which is severe swelling of my supraclavicular lymph glands. My doctor believes it is an autoimmune issue. She is probably correct. And even though I tested positive for an autoimmune issue, I am still concerned about lymphoma because I have almost all the symptoms. I’m also a little worried about my lungs because we discovered the house we’ve lived in for 25 years has a high level of radon and my neighbors, a couple who never smoked, both died of lung cancer last summer. We remediated the radon about eight years ago; but after my neighbors’ deaths and having this cough for two years I’m a little worried. My doctor told me to focus on the AI issues because lymphoma and lung cancer are unlikely. She referred me to a rheumatologist who cannot see me until the end of July. The waiting and worrying has been driving me crazy.

    After reading your post, I called today and was able to get an appointment with a doctor who will look at my swollen glands (April 10th), a pulmonologist (April 26th) and a rheumatologist (May 22nd). It seems like a lot of doctors; but I am tired of feeling crappy and worrying.
    finished 8th grade (our fifth year homeschooling)
    Dumplett (girl - age 14) and Wombat (boy - age 14)

  6. #15

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    an update...

    Deli76 and Lianne13, I am so glad I read your posts that motivated me to make appointments with specialists.
    Last edited by dbsam; 07-03-2018 at 11:56 AM.
    finished 8th grade (our fifth year homeschooling)
    Dumplett (girl - age 14) and Wombat (boy - age 14)

  7. #16

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    Deli76 and dbsam, I’m so sorry to hear of all you’re going through. Deli76, we had a similar situation in my family. My cousin was 40 and had been to the ER the night before. They should have done an ekg rather than send him home. He had a heart attack the next morning and died. There’s so much sadness in this world already, that it’s just so heartbreaking when what seems totally preventable has to still happen.

    I have migraines, anxiety and depression. I’m on meds for the anxiety and depression, so that makes me pretty level headed and usually doesn’t interfere w/ homeschooling. Sometimes my anxiety will get the best of me and I’ll be really stressed about what we’re behind on, but I attribute that more to my overscheduled life (homeschooling + work is difficult). I’d quit my job if I could, but I need the money and it’s super flexible and part time.

    The migraines totally take me down a couple days a month. Luckily I can switch my work schedule (if it’s a work day) and just homeschool differently for the day. Some days we’ve just listened to new audio books. Other times DD has brought her workbook work (handwriting, phonics, spelling) to my bed with a lap desk. We don’t usually use math workbooks, but have a couple she can use when I feel too sick to teach. DD loves to read (pat myself on the back here for instilling a love of reading) which is very helpful bc she’ll think down time is great and go off somewhere in the house and read a stack of books. Other times I’ll give her the iPad (thank goodness for Guided Access!!!) and let DD only use educational apps. We’ve also watched documentaries from our BYL curriculum. I love the flexibility of homeschooling, bc your child can do everything from hands on science experiments to process art projects, field trips, read alouds, and documentaries all within the same week.
    Last edited by Only; 05-02-2018 at 10:32 PM.
    We took the summer off as I couldnít get anything started w/o a regular routine in place. Doing 3rd grade now and so far so good.

  8. #17

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    Only,
    I have migraines, anxiety, and depression too.
    I think it is easier to HS than send the kids to school with these diagnosis.
    Like you, we are able to work around it with homeschooling. It is one of my concerns with the kids going to school. But now that they are teens, they can get themselves up and out. When they were little and in school they sometimes missed because I couldn't drive with a migraine.
    I work form home part-time so I can adjust my work time when needed.
    finished 8th grade (our fifth year homeschooling)
    Dumplett (girl - age 14) and Wombat (boy - age 14)

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